The day did not get off to a good start. I’d got my arm band and was waiting to be called back for labs and to have my port accessed, and their secret special computer program crashed. Since it’s a system-wide program, it was down everywhere in the building, and possibly in all the Covenant facilities. After about 45 minutes, they announced that the system was down and they estimated it would be back up in an hour. I got there at 8:00 a.m. and it was sneaking up on a quarter after 9:00 by then. In the meantime, the waiting room was filling up like an airport when they’ve cancelled flights at the last minute. Somebody got the bright idea to go old, OLD school and fill out paper forms for each patient based on what data they could access locally.
My labs were supposed to be drawn at 8:00 and my appointment with the oncologist was supposed to be at 9 o’clock. It was 9:30 before I got my labs and access. (The computers were down in the labs, too. Fortunately they could make printouts from each piece of lab testing equipment and hand carry them upstairs, so he had my lab results.) It was 10:30 before I hit the oncologist’s waiting room and almost 11:00 before I got to see him. He is neither reticent nor stoic, and I expected him to be sizzling and spitting like a drop of water on a hot griddle considering the computer problems, but he was remarkably calm.
I have begun to experience some peripheral neuropathy on the very tips of my fingers in the form of numbness, worse on the thumb, index and middle fingers of my right hand, which I reported. I have just started noticing this in the last week or two. He said the culprit is the vincristine (Oncovin) and we can stop that. I made the remark that I was glad this was my last session, and he seemed surprised and asked me if I wanted to stop treatment, which he didn’t advise. That was when we discovered there had been a miscommunication. He had told me I would have 6 sessions, and I was under the impression that we were counting from my first session in February. Nope. Guess again. What he meant was that I was to get 6 doses of Rituxan, of which I’ve only had 3 counting the one I got today. This was very depressing news as this whole business has been going on since February and it has been just slowly but surely grinding me down. (Of course, it’s not nearly so bad as it was in 2018 when I had four hospitalizations, a heart attack and pneumonia and was on bottled oxygen for a month . . . ) He is going to give me an extra week of recovery time before I go in for #4, on July 18. (yay.) This means I might be done with this mess by September. Sigh.
Needless to say, I was kind of bummed. He did stop the vincristine, so all I got today was cyclophosphamide, prednisone, and Rituxan. Even so, it was a quarter til 6:00 before I hit the pavement.
On my way home, when I got to the intersection of 19th Street and Quaker Avenue, instead of going straight, I made a left turn onto 19th and went ALL the way out to the closest of the four Arby’s in town. (They have the meats!). North-south Quaker crosses east-west 19th Street between its 4400 block and its 4300 block. The Arby’s I go to is in the 5700 block, way the heck out past LCU and the city library branch where I go to knitting group. The other three locations are on 82nd Street. But I had my heart set on a beef gyro and a mess of curly fries. Guess what. They were out of their special gyro sauce. I said to give me one anyway and give me a couple packets of Horsey Sauce. She discounted the price a dollar because of no gyro sauce, which was the best thing that had happened to me all day (until I ate my gyro and curly fries, that is!).
In the knitting news, I’ve started in on baby booties again, which I haven’t made in years. I’m writing a new pattern for them which will appear on Knits From The Owl Underground as soon as I finish bouncing off the walls from the prednisone. It’s the No-Tears Toe-Up Baby Booties with Fleegle Heel and Crocheted Cuff Edging. I’m test knitting the new pattern using left over yarn from the 9-Bladed Circular Baby Blanket based on this circular shawl pattern. The toe starts with a Turkish cast on of 14 stitches and increases to 28 stitches total, so they go fast. I’ve got plenty of the Botticelli Red Malabrigo Sock yarn. My thought was to make a pair to match the dress.
The Fleegle Heel is a gusseted heel (versus the humpty-eleven other types of heel construction). Some heel constructions (e. g., short row heel) tend to leave a noticeable gap/hole at the end of the decreases, but this method doesn’t. It has a long Bobby Socks style, fold over cuff worked in 1 x 1 ribbing. The feedback I’ve gotten on this cuff style is that they really stay on well.
When I came back from my Walmart run yesterday, I noticed they’ve done some of what my step grandfather (AKA “Grandma-paw”) used to call “landscraping” on the pergola by where I park my car. They’ve given the wisteria on the pergola a haircut, done some planting, and put in a walkway.
Some day when the weather isn’t going to be hotter than a $2 pistol firing uphill, I’ll have to go sit and knit for a bit.
I’m trying to stay positive. Just a matter of hitching up my big girl panties and getting on with it. An Arby’s gyro and curly fries and some Cherry vanilla Häagen–Dazs® ought to perk me up. Think I’ll sit down and eat it.
2 thoughts on “Noooooo. . . . !”
I’ve always found that the medicinal application of ice cream can alleviate a lot of woes. It’s also a way to help cool our core temperatures, so ice cream in summer is more than an indulgence.
Your tale of the computer system’s crash reminds me of the time several years ago the Texas DMV crashed. I was attempting to do something at the time — maybe renew my tags — when we got the announcement that the main servers in Austin were down, ad that was it. As goes Austin, so goes League City, and everywhere else in the state. I just went home at that point, since there was no telling how long it was going to take to get things going again. Sometimes, retreat is the best decision.
Your story reminds me of a fitness instructor that counts down “5… 4… 3… 5… 5… 4… 3…” 😐 I love the colors on the baby socks! (The number of DPNs to be fiddled with though–always seems like a hassle to me.)